I don't enjoy Saturdays very much. Most of our younger friends are working all week long and have family and chore commitments of course that are confined to the weekends. There are lots of things we could be doing to entertain ourselves, even around home, but it seems that on Saturdays we both lose all ability for creative thought and all motivation to take action. Why it has always been that way I have no idea, but today was still a good Saturday, for me at least.
My husband had full blown CFS exhaustion ALL day, but still managed to remain awake long enough to run an errand across town in the very late morning. He also pulled out enough energy to take the car to the car wash and do a thorough cleaning before he came home. About the time we thought we would be having lunch, he decided on a certain sandwich filling he was desperate to have, so we walked over to the grocery store and back. I am pleased to say that I only used my cane for part of the distance, hanging it over my arm when not in use. (Sadly, as we entered the lot at the store, we encountered a middle aged fellow in the throes of a reaction to Fentanyl or Oxycontin. He was shaking and jigging about in his own little world, absolutely tormented about whatever it was he was seeing in his mind. He had a lilac terry towel bathrobe pulled over his ragged jeans, lumber jack shirt and torn hoodie. When we came out of the store he was lying on the ground not far from where we had encountered him, either unconscious or dead from an overdose, with the store security agent hovering over him while calling for an ambulance. It was like a mini picture of riding the bus up and down north Main Street in Vancouver....a tiny microcosm of the despair that permeates that part of our otherwise favourite city. To see someone suffering that kind of distress 4 blocks from our home just made me tear up and pray that somehow there will one day be an answer for these dear people who are so lost in their addictions, to the point of death far too often.)
As soon as we finished our lunch my husband had another sleep for about 4 hours, stumbled downstairs still in a fog, decided he would wake up more easily in the cool of the basement, went down and promptly fell asleep on an old bed we have stored there. He slept for another two hours, got up and ate dinner in front of the tv and is now dozing in the recliner in the living room. Sigh....this episode of CFS is going to be prolonged I'm afraid. It could take a couple of months to get past this, which will ruin his plans for mountain hiking next month. Oh how hard I am praying he will be well enough to go by then as it would encourage him so much. He needs that desperately right now as he is so upset this miserable disease has stopped him in his tracks once again. Poor guy....
My own day went well, aside from being very concerned about my husband and feeling so sad about our parking lot friend. Although it took me all day to accomplish my personal checklist of tasks for today, by the time I was ready for dinner at 6pm I managed to get my household chores done, plus two sessions of physiotherapy, the walk of course and a short nap of my own in the late afternoon. Normally I would have been able to do everything on my list in about three hours worth of time this morning, but when my husband is suffering with CFS sleep symptoms I have to slow myself down to keep from becoming impatient about having to work around someone who shouldn't be awakened by noise or excess activity around him when he is sleeping so soundly. Hours later than it would have normally taken me, all my tasks were completed! YAY!
The weather today has been just great. By 10am I had all the windows open to let the breeze take the staleness out of the suite. The sun shone brightly and although there were the usual prairie wind gusts for a lot of the day, it was most pleasant being outside for our walk to the store. Tonight I stood out on the back porch for a half hour after dinner and enjoyed watching a neighbour on the other side of the parking lot teaching our two youngest Syrian boy neighbours how to safely approach and pet his rather large puppy, how to hold their hands when giving the puppy treats and how to stay calm in the puppy's presence. He took so much time with them. It was very sweet to watch. The little boys responded well and the puppy now has two new friends.
Not much of a day perhaps for most of you, but when CFS symptoms enter our home, everything has to slow to a crawl so that my husband can cope. Plans have to be cancelled often at the last minute, hopes of going here and there put on hold sometimes for weeks at a time, chores have to be juggled around attacks of sleepiness. This has been going on for the past 40 years now, with some blessedly long breaks between serious attacks, so since my husband has done remarkably well for the most part over the past five years, I can't really complain that this chronic condition has once again raised its ugly head.
Not sure if I will be on my own going to church tomorrow or if I will need to remain at home on Zoom in order to ferry food and drink to my husband if he isn't able to get out of bed, or if he will wake up feeling wonderful and be able to come with me to the service....there certainly are such surprisingly good days now and then even in the midst of the worst episodes.
The friend I spent yesterday afternoon with called me today to say how much she enjoyed herself visiting together. She also let me know her husband was on the way home from his out of province medical appointment and as I look at the time right now I am guessing he has been home for a couple of hours. So I can relax now knowing she is not alone any more and will be okay.
The good weather is supposed to last for a few more days before cooling down to more seasonal temperatures, but those are good temps too. NO complaints!
We shall see what tomorrow brings around here.......